Showing posts with label cochlear implant. Show all posts
Showing posts with label cochlear implant. Show all posts

Thursday, June 30, 2011

The Metal in My Head (also known as part 2 of My Deaf History)

This time I wanted to write about my cochlear implant experiences.

About 6 weeks after I turned 17, I flew down to Los Angeles with my mom to get implanted at the HEI down there. We went there because at the time very few implants had been done in Portland, and my parents wanted to go with someone who had much more experience (if it was now, I'd stay in Portland -- OHSU has an awesome implant team, and both of my husband's were done there).

After passing psychological testing and some auditory tests, we prepped for surgery the next day. I believe surgery was at about 8:30am and I woke up around 1-2pm, slept on and off, and was finally ready to go home at 6pm. (Nowadays it is even simpler -- husband was in at 10am and out by 2pm with both of his.) "Home" was my Aunt's house who lives south of L.A., and it was a nice place to be. I think I stayed 2 nights after the surgery before finally flying home. Meanwhile I had this huge bandage on one side of my head, and it was very tender, so sleeping was a bit uncomfortable for awhile.

When we got home it was Thanksgiving time and we decided to go to our Central Oregon ranch house for the holiday. I remember that we were given instructions that I could not go more than 5000 feet above sea level while I was healing, and the summit of the Santiam pass is approximately 4800, so luckily we were able to go over!

It was a month before I was able to go to my audiologist to have the cochlear implant put on for the first time. That was an exciting and strange experience. When it was first on and people began talking to me, I didn't hear it, but rather experienced sound as a "flooding" sensation, starting localized in the ear that had just been implanted, and growing until it affected my entire head, a process which took a few days. (Other people I know have described similar things, one person felt/heard it in his heart at first!) This sensation was very weird, and to say I couldn't even recognize my own name was an understatement, whereas before, with my hearing aids I would have heard and understood my name.

Over time I began to experience sound more by hearing rather than by feeling. For months I had to frequently ask people what sound I was hearing -- siren, lawn mower, dryer beeping, etc. in order to learn to match the sound with what made it. (I still do this on occasion.) There was one particular sound that I would occasionally hear, but never had the opportunity to ask someone what it was. It sounded very metallic (robotic?) to me. I had no idea what it was. One day I was in my bedroom and heard that sound again. It was spring, and my window was open. Looking out, there was a bird sitting on a wire, and I could see his beak moving in a way that matched the sound. Aha! It took a long time for the sound of birds to go from totally annoying to something that sounds good, evidence of the constant and ongoing learning that one does with a cochlear implant. And that is never more evident than when I am able to upgrade the external component of the cochlear implant, as new and better models are made, but I'll get back to that.

When I got my implant, I had 2 years of high school left, so that meant 2 more years with speech teachers before graduation. I adored the woman who was with me throughout high school, and she did a fantastic job working with me on learning to listen with the cochlear implant so that I made rapid progress both with listening and with speech (I could, for the first time in my life, hear 'sh,' 'z,' 'ch' and thus was finally able to reproduce them!) We did a wide variety of listening exercises, but the one I remember most is when she would read a children's book to me behind my back and I had to try and pick out words and get the story. These were not familiar books such as "This is the story of Snow White" but were random books. Not easy to do.

Today I still wear my cochlear implant - 18 years now! And luckily the internal component has stayed alive (the warranty expires after 1o years). Each new processor brings an improvement in hearing and new learning of sounds. So glad I got it.

Friday, January 23, 2009

FedEx Story, The End

Oh, the whole FedEx story/drama? All done. I called the cochlear implant company and sheepishly explained the story. They were totally cool about it and promptly sent me packaging and a FedEx label to use to send the cochlear implant processor back to them.

Which I did, AFTER writing down the tracking number and gluing tacking it to my bulletin board. It is still there, 3 months after I sent the package. Because I can't be too sure.

Tuesday, October 21, 2008

FedEx Story, Part 2

So this is part 2 of a story, only I didn't know there was going to be part 2. If you haven't read part 1, about the FedEx story, please do so, otherwise the rest of the post won't make as much sense.

A few days after I had resolved the FedEx debacle regarding shipping the cochlear implant, I happened to take another look at the paperwork that FedEx had sent me with that precious tracking number. I then noticed, much to my horror, that the company received said package on July 28th and not June 28th, which is what would have made sense given when I shipped said package. Once I discovered this crucial piece of information I did the honorable thing nothing. What did you think I was going to do? Call the cochlear company and say "whoops, my mistake. Looks like that tracking number wasn't actually for the package I sent you. Go ahead and charge me $4500 for a package I am damn sure you received."

So nothing has happened.

Then today Urban Shaman came home. A little background information -- he has bilateral cochlear implants, which means one in each ear. Right ear was implanted in 2004, and he has a processor called the Esprit 3G in that ear. Left ear was implanted in 2008 and has a processor called the Freedom. We had shipped an Esprit 3G back to the company.

Urban Shaman: I found an Esprit 3G in my coat pocket today.

Gaia Hippie: What? Oh do you mean the other Freedom? (He has 2, but only wears 1.)

US: No, I mean the Esprit 3G.

GH: What the hell? Show me.

US: Goes to coat, which is a black hole and from which many miscellaneous items have suddenly been recovered. He brings back an Esprit 3G.

GH: Checks to see that there is one Esprit 3G on his ear, and another one in his hand. It suddenly dawns on Gaia Hippie that this could be the missing Esprit 3G that the company was charging us $4500 for.

It never made it inside of the box.

We shipped them an empty box.

Whoops.

Monday, August 11, 2008

Got a tracking number? Tattoo it on your forehead.

Now that this is all resolved, I can finally blog about THE ISSUE that has been causing me anxiety and making me lose sleep this past week.

Back in June Urban Shaman needed a replacement cochlear implant processor (the external piece) as his was worn down and not functioning 100%. So the company sent us a replacement, along with a box with a pre-labeled FedEx box in which to return the old one. So the old one went into the box, got sealed up, and taken to a FedEx location and shipped off. The company said the old one needed to be shipped within 15 days or they would charge us for the replacement.

Fast-forward to over a month later... we receive an invoice in the mail for $4500. Apparently the company never received the replacement processor we sent back. So I started searching for the paper that had the tracking number on it. I searched, and searched.... and searched. Nothing. A feeling of dread came over me.

I called the company and they were really nice and totally acted like I had sent it, and we just needed to figure out where it was. Of course we needed the tracking number. The person on the other end of the phone stated she would check with the warehouse and call me back that same day. Well I never received a call back.

A few days later we got a second invoice for $4500. So I called them again and explained the situation again. They basically indicated I needed to figure out where it went. So I drove back to the FedEx location where I had dropped off the box to see if they could find it in their computer records. No luck -- they purge the records after a month, and at this point it had been more than 6 weeks. They did suggest I call 1-800-goFedEx.

So yesterday I called. Explained the situation to a nice woman. It was kind of complicated since the company was in the process of switching locations and thus had 2 addresses and they weren't sure which address was on the shipping label. And my information was not on the label at all. Worse, I wasn't sure exactly which day I had shipped the box, just a ballpark date.

However, Karen Smith at FedEx is my hero. After about 10 minutes of searching she found a package shipped on June 24th from Portland, OR to the company. The return address was one of the company's addresses, the "to" address was the other address. I am 99.9% sure that that is the package. So she gave me the tracking number.

A huge, great weight has been lifted off my shoulders. No longer are 4500 dollars floating around in the air.

So today I will call the company and give them the tracking number which clearly indicates that they received and signed for the package on June 28th. Bastards.